Table 1

Overview of the included health outcomes and instruments/tools for the specific ages with agreement from health professionals and parents

Age in years		Age-ranges																									Endorsed to be important by the Consumer Open Review
Age in years		0	1	2	3	4	5	6	7	8	9	10	11	12	13	14	15	16	17	18	19	20	21	22	23	24	HP (%)	Parents* (%)
Health outcomes included in OPH Standard Set for the specific age-ranges as agreed on
Mental	Cognition /intelligence						√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	98	86
	Mood						√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√		91
	Mental Health						√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√		95
	Coping									√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√		91
	Self-efficacy														√	√	√	√	√	√	√	√	√	√	√	√		86
	Self-esteem														√	√	√	√	√	√	√	√	√	√	√	√		90
Social	Development	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√								88	95
	School Attendance						√	√	√	√	√	√	√	√	√	√	√	√	√									77
	Communication	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√		93
	HRQoL	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√		91
	Social Functioning	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√		92
Physical	Eating	√	√	√	√	√	√																				92	91
	Hearing	√	√	√	√	√	√	√	√																			88
	Vision	√	√	√	√	√	√	√	√																			99
	Nutrition	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√									91
	Growth	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√									88
	Survival	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√		88
	Mobility	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√		93
	Pain-free	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√		89
	Sleep	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√		94
	Fitness									√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√	√		88
	Sexual Health																		√	√	√	√	√	√	√	√		76
Instruments and tools included in the OPH Standard Set in order to measure the agreed-on specific health outcomes																											PROM	C	N
CDC Milestone Checklist																											x	x	10–29
Visual Acuity test—E-Chart																												x	N/A
Visual Acuity test—Snellen-Chart																												x	N/A
WHO Growth Charts—early years																												x	6
WHO Growth Charts—school age years																												x	6
School attendance																											x		1
ICHOM Standard Measure: Survival																												x	3
PROMIS Parent Proxy Scale—Global health																											x		9
PROMIS Parent Proxy short form—cognitive function																											x		7
PROMIS Pediatric Scale—global health																											x		9
NIH Toolbox—self-efficacy CAT																											x		10
PROMIS Short Form—sleep disturbance																											x		4
PROMIS Pool—sexual fct. and satisfaction-screener																											x		3
PROMIS short form—cognitive function																											x		4
AQoL-8D																											x		35
Total number of questions (n) within age-specific tool packages		20–39						25							31					49
Time to complete (min)		30–41						24–30							26–32					13–23
Agreement with the age-specific toolset from HP (%)		94						98							96					94

Information and definitions for all variables, data sources and recommended timeline for data collection is provided in the reference guide: https://connect.ichom.org/standard-sets/pediatric-overall-health/.
*Parents and caregivers.
√, included based on consensus, grey colour indicates that the respective health outcome is measured at this age, since it is measured by one of the instruments/tools that were agreed upon, and light grey colour indicates that the E-chart can be used as alternative to the Snellen Chart depending on what works best for the child; AQoL-8D, Assessment of Quality of Life-8 Dimensions; C, clinician reported; CDC, Centers for Disease Control and Prevention; HP, health professionals; HRQoL, health-related quality of life; ICHOM, International Consortium for Health Outcomes Measurement; N, number of questions; N/A, not applicable; NIH, National Institutes of Health; PROMIS, Patient-reported Outcomes Measurement Information System.